Make sense of the diagnosis.
What an isthmocele is, how it is investigated, and the treatment options to discuss.
Understand the conditionPatient-led. Experience-informed.
You are not
alone in this.
A place to find understanding, shared experiences, and a way forward with an isthmocele diagnosis.
Also called a uterine niche or cesarean scar defect.
THE NICHE PROJECTRoom for your story.
At your own pace.
At your own pace.
A little clarity, one step at a time
Wherever you are,
start here.
Learn from lived experience.
Explore patient stories and individual repairs. Start with the essentials; go deeper when you want to.
Explore the registryPrepare for your next conversation.
Find a community-sourced surgeon directory and take useful questions to your appointment.
Get the question guideFind a surgeonThe story behind the project
Built by patients.
For patients.
After one c-section and one VBAC, Karen developed an isthmocele that led to years of unexplained secondary infertility, loss, delayed diagnosis, and two surgeries before finally finding a path forward.
She found support in the stories of other women, but she also found huge gaps: scattered information, little awareness, and not enough clear guidance for patients trying to advocate for themselves.
Read Karen's storyWHY THIS EXISTS
Four years.
Two repairs.
One miracle.
There is room for you here
Your experience
belongs in the conversation.
When you feel ready, you can share your experience with the registry. You choose whether your story is public and whether others can contact you.
Share your storyLooking for a conversation rather than a form?
Visit the Facebook support group